Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers

Table 1 Variable measurement across three time points in the PGen Study

	Survey
Variable domains	Baseline (BL)	2 weeks (2 W)	6 months (6 M)
Personal characteristics
Demographic information	+		+
Emotional states	+	+	+
Genetic literacy	+	+	+
Numeracy	+
Motivations and expectations	+
Personal health
Personal and medical family history	+
Health status and health behaviors	+		+^a
Disease risk perceptions	+	+	+
Conditions of interest	+
Health care
Insurance status	+		+^a
Use of medical screening services	+		+
Use of medical diagnostic services			+
Responses to personal genomic testing
Sharing of genetic results	+		+^a
Reactions to genetic results		+	+
Perceived utility of results		+	+
Use of genetic results			+
Information-seeking behaviors			+
Satisfaction with experience			+^a

A plus sign indicates measurement of variables within that specific category. ^aVariables in this category were also evaluated on the 6 Month Non-Responder (6 M-NR) survey.

ISSN: 1756-994X